Reviewer: 55-64 Female on Treatment for 1 to 6 months (Patient)

Comment:
No one told me I needed two separate payment assistant cards (one for IV and one for self injections) so Orencia never paid Aetna Pharmacy for the copay portion. I have been dealing with thi bill for almost a year. I have only been given the run-around by staff of Orencia and Aetna Specialty Pharmacy. I tried Orencia through IV and self-injections in which both made my RA condition even worst ... Show Full Comment

Comment:
No one told me I needed two separate payment assistant cards (one for IV and one for self injections) so Orencia never paid Aetna Pharmacy for the copay portion. I have been dealing with thi bill for almost a year. I have only been given the run-around by staff of Orencia and Aetna Specialty Pharmacy. I tried Orencia through IV and self-injections in which both made my RA condition even worst. It's bad enough they are hounding me for the co-pay of $281 (I did pay the remaining balaance) but it's hard to pay for a drug that made my RA worst.
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Reviewer: KristyRose, 35-44 Female on Treatment for less than 1 month (Patient)

Comment:
I tried Orencia for the first time last Friday via self-inject and I have not felt well since. The day after the injection I was bed-ridden for 2 days unable to get up and move around. When I did, I was out of breath. I could not concentrate and even today, 5 days letter, my brain feels fuzzy. This is my 4th biological drug. I am 35 years old, diagnosed with RA in 1994. Humira worked well for 6 ye ... Show Full Comment

Comment:
I tried Orencia for the first time last Friday via self-inject and I have not felt well since. The day after the injection I was bed-ridden for 2 days unable to get up and move around. When I did, I was out of breath. I could not concentrate and even today, 5 days letter, my brain feels fuzzy. This is my 4th biological drug. I am 35 years old, diagnosed with RA in 1994. Humira worked well for 6 years then stopped, Enbrel for a year and Remicade not at all. All of these drugs give me severe fatigue for days after use. Seeing as Orenica is weekly, I cannot afford to be bedridden for days at a time each week. My doctor says that she has never heard of such reactions, so now I have to start something new altogether. I'm so tired of physicians telling us all that "they have never heard of (insert symptom) that reaction in other patients"- yet here we all are discussing various symptoms such as weight gain, depression, fatigue. I'm frustrated and at my wits end. My disease is severe and active, I've been off work almost 2 years, had joint replacement on my right shoulder and I'm terrified on my future with this disease. Anyone else experience extreme fatigue for days after treatments with biologics? Thank you for your reviews and feedback, makes me feel like I'm not the only one. I hope all of us find relief in the coming days. Kristy
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Reviewer: billienm55, 55-64 Female on Treatment for 6 months to less than 1 year (Patient)

Comment:
The only thing I can tell it may help sometime is the fatigue I feel. It hasn't slowed down my joint pain or swelling.

Comment:
The only thing I can tell it may help sometime is the fatigue I feel. It hasn't slowed down my joint pain or swelling.
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Reviewer: mary, 65-74 Female on Treatment for 1 to less than 2 years (Patient)

Comment:
This medicine took my lungs. Very dangerious medicine. RA was bad enough but now I have no breath after walking a short distance. I can not lift things or exercise. Soon after it started, I told my doctor I could not bring my groceries inside to my kitchen without being short of breath. Finally he took me off and now I noticed a disclaimer about COPD on the side effects of the new packaging. Don ... Show Full Comment

Comment:
This medicine took my lungs. Very dangerious medicine. RA was bad enough but now I have no breath after walking a short distance. I can not lift things or exercise. Soon after it started, I told my doctor I could not bring my groceries inside to my kitchen without being short of breath. Finally he took me off and now I noticed a disclaimer about COPD on the side effects of the new packaging. Don't take this drug. My life will never by the same.
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Reviewer: Marci, 55-64 Female on Treatment for 10 years or more (Patient)

Comment:
Have had RA for more than 20 years but since menopause it became much worse. Have used Enbrel and Humara Methotraxate etc. Methotraxate created liver issues and Enbrel worked well for more than 5 years. Orencia IV worked great for 2 years; the shots did not work. Now it is no longer working so we are going to a different drug hoping something else will work.

Comment:
Have had RA for more than 20 years but since menopause it became much worse. Have used Enbrel and Humara Methotraxate etc. Methotraxate created liver issues and Enbrel worked well for more than 5 years. Orencia IV worked great for 2 years; the shots did not work. Now it is no longer working so we are going to a different drug hoping something else will work.
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